Genomic Medicine

45 Results

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Research

Feb 10, 2022

Demonstrating Trustworthiness When Collecting and Sharing Genomic Data: Views Across 22 Countries

We examine how participants from 22 countries perceived the relative value of measures to demonstrate the trustworthiness of those using donated DNA and/or medical information.
Research

Feb 10, 2022

Members of the Public in the USA, UK, Canada and Australia Expressing Genetic Exceptionalism Say They Are More Willing to Donate Genomic Data

This paper examines how acceptance of data sharing pertains to the perceived similarities and differences between DNA and other forms of personal data.
Research

Feb 8, 2022

Return of Genomic Results Does Not Motivate Intent to Participate in Research for All: Perspectives Across 22 Countries

The aim of this study was to determine how attitudes toward the return of genomic research results vary internationally.
Research

Nov 23, 2021

Technological Approaches to Human Performance Enhancement

This report provides an examination of three possible modalities for generating human performance enhancement: genetic modifications, artificial intelligence, and Internet of Bodies approaches (implanted or worn devices are connected to a network).
Commentary

Aug 6, 2021

Commercialisation and Open Science Do Not Have to Be Uneasy Bedfellows

On the surface, tension exists between commercialization and open science approaches to research. But the two approaches are not irreconcilable--they can exist in harmony and complement one another to generate greater impact from investments in research and innovation.
Project

Jul 8, 2021

Your DNA, Your Say

RAND Europe is providing support to the Your DNA, Your Say project in terms of design and implementation of the analysis of survey data and reporting results in scientific papers.
Research

Jun 17, 2021

B-cell Lymphoma and Non-Hodgkin's Lymphoma Treatment: How Do Participants of Chimeric Antigen Receptor T-cell (CAR-T) Therapy Research Studies Compare With Patients in the US Population?

Chimeric antigen receptor (CAR)-T-cell therapy appears to be a promising treatment for B-cell and non-Hodgkin's lymphoma. CAR-T therapy effectiveness in the general population of patients may differ from effectiveness demonstrated in trials.
Research

Mar 12, 2021

An Evidence Map of Randomised Controlled Trials Evaluating Genetic Therapies

This evidence map provides a broad overview of the genetic therapies that have been evaluated in randomised controlled trials for efficacy and safety.
Research

Feb 11, 2021

Measuring the Value of Invention: The Impact of Lemelson-MIT Prize Winners' Inventions

This report uses the inventions of Lemelson-MIT Prize winners as examples to illustrate the scientific, technological, economic, and social impacts that inventions can have on society.
Research

Sep 22, 2020

Global Public Perceptions of Genomic Data Sharing: What Shapes the Willingness to Donate DNA and Health Data?

Analyzing genomic data across populations is central to understanding the role of genetic factors in health and disease. This paper presents results from a very large public survey on attitudes toward genomic data sharing.
Commentary

Jan 10, 2019

Ethics of Germline Editing Must Keep Up with Technology

Mainstream interest in genome editing is now surging. If this research is to go forward, the science should be well understood by those conducting the research. Best practices and the highest scientific standards should be employed to limit risks and prevent unintended consequences.
Research

Aug 17, 2018

Best Practices for Participant and Stakeholder Engagement in the All of Us Research Program

RAND researchers identified best practices for engaging participants in the All of Us Research Program, which collects long-term health data from 1 million U.S. adults. Engagement involves awareness, enrollment, and retention of program participants.

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Genomic Medicine

Genomic Medicine

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Demonstrating Trustworthiness When Collecting and Sharing Genomic Data: Views Across 22 Countries

Members of the Public in the USA, UK, Canada and Australia Expressing Genetic Exceptionalism Say They Are More Willing to Donate Genomic Data

Return of Genomic Results Does Not Motivate Intent to Participate in Research for All: Perspectives Across 22 Countries

Technological Approaches to Human Performance Enhancement

Commercialisation and Open Science Do Not Have to Be Uneasy Bedfellows

Your DNA, Your Say

B-cell Lymphoma and Non-Hodgkin's Lymphoma Treatment: How Do Participants of Chimeric Antigen Receptor T-cell (CAR-T) Therapy Research Studies Compare With Patients in the US Population?

An Evidence Map of Randomised Controlled Trials Evaluating Genetic Therapies

Measuring the Value of Invention: The Impact of Lemelson-MIT Prize Winners' Inventions

Global Public Perceptions of Genomic Data Sharing: What Shapes the Willingness to Donate DNA and Health Data?

Ethics of Germline Editing Must Keep Up with Technology

Best Practices for Participant and Stakeholder Engagement in the All of Us Research Program

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Genomic Medicine

Genomic Medicine

Related Topics

Explore RAND’s Work on this Topic

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Demonstrating Trustworthiness When Collecting and Sharing Genomic Data: Views Across 22 Countries

Members of the Public in the USA, UK, Canada and Australia Expressing Genetic Exceptionalism Say They Are More Willing to Donate Genomic Data

Return of Genomic Results Does Not Motivate Intent to Participate in Research for All: Perspectives Across 22 Countries

Technological Approaches to Human Performance Enhancement

Commercialisation and Open Science Do Not Have to Be Uneasy Bedfellows

Your DNA, Your Say

B-cell Lymphoma and Non-Hodgkin's Lymphoma Treatment: How Do Participants of Chimeric Antigen Receptor T-cell (CAR-T) Therapy Research Studies Compare With Patients in the US Population?

An Evidence Map of Randomised Controlled Trials Evaluating Genetic Therapies

Measuring the Value of Invention: The Impact of Lemelson-MIT Prize Winners' Inventions

Global Public Perceptions of Genomic Data Sharing: What Shapes the Willingness to Donate DNA and Health Data?

Ethics of Germline Editing Must Keep Up with Technology

Best Practices for Participant and Stakeholder Engagement in the All of Us Research Program

Oops! An unexpected error has occurred.